“On the up days and the down days, at home and in the hospital, when we feel good and when we don’t, the Bible says: Let your requests be made known to God. (Philippians 4:6)

 

DAY TO DAY PRAYING: LIVING IN THE MIDDLE

 

In 2013, when three of my five children were diagnosed with the same serious genetic condition (Alpha-1 Antitrypsin Deficiency), my world flipped upside down. I didn’t know what to think then, let alone what to pray. Maybe you’ve felt the same way.

Perplexing circumstances can so often leave us at a loss for words when it comes to prayer. Is God listening? Does He care? When the situation in front of us seems so tangled and messy, how do we even start to string a sentence together?*

Like many families facing the unknowns of a chronic condition, my family lives in the middle chapters of an unfolding story. We don’t know how it will play out. Yet over the past several years, not only has the Lord helped my husband Scott and me to grow in prayer for our children in the day-to-day, but He’s also shown great mercy in His answers to those prayers.

 

FLUCTUATING DAYS: TIME TO PRAY AGAIN

 

Our days fluctuate. Shortly after my children’s Alpha-1 Antitrypsin Deficiency diagnosis (a condition that “may result in serious lung disease in adults and liver disease at any age”*), there was a flurry of specialist appointments, repeated blood tests, and new medications to administer. The night before taking a child to the lab for blood work, I would text some friends and ask them to pray. In my church small group, I confessed my struggle to come to grips with parenting through these unforeseen challenges.

Then, in a matter of months, one child was diagnosed with a rare form of food allergies and hypoglycemia in addition to Alpha-1. These new conditions involved allergy tests, monitored food introductions, and overnight stays at the hospital – desperate times called for desperate prayers.

When two children later tested positive for celiac disease, requiring a strict gluten-free diet, our reset button was pressed again. It was time to adapt our kitchen and family menu. It was also time to pray – again.

Our daily lives (yours and mine) may look different depending on the relative health we and our loved ones experience. Still, Scripture invites us to pray without ceasing (1 Thessalonians 5:17). On the up days and the down days, at home and in the hospital, when we feel good and when we don’t, the Bible says: Let your requests be made known to God (Philippians 4:6). The exhortation is clear – pray.

 

IN THE NITTY-GRITTY DETAILS: GOD HEARS AND ANSWERS PRAYER

 

When we pray, we can be confident our heavenly Father hears us: When the righteous cry for help, the LORD hears (Psalm 34:17a). We can know that God hears ….

God hears, and He answers. He may or may not remove our suffering, but as he told Paul:

My grace is sufficient for you,
for my power is made perfect in weakness.

(2 Corinthians 12:9a)

The same is true for us!  God gives us sufficient grace. In our weakness, He is strong. He is truly enough.

Today, I thank the Lord for the relatively good health my children experience. Although all three of my children with Alpha-1 had elevated liver enzymes at the time of their diagnosis, their numbers have normalized. My other child outgrew the food allergies and no longer displays the more severe symptoms of hypoglycemia. My children with celiac disease have adapted to their diet. These are all examples of God’s merciful answers to prayer.

This doesn’t mean that our family’s perplexities have disappeared. Scott and I still take our children’s health seriously, but in the nitty-gritty details of setting out vitamins and inhalers, the Lord teaches us to pray about all these things. His faithfulness to our family up to this point encourages us as we pray toward the future.


* Unless otherwise noted, all quotations in this article are taken from Katie Faris’s book, He Will Be Enough: How God Takes You by the Hand Through Your Hardest Days, published by The Good Book Company, June 2022.

QUESTIONS FOR REFLECTION 

  1. When have you asked others to pray for you and/or your family, and what difference has it made to know that others are linking arms with you in this way?
  2. Even if the Lord hasn’t removed your suffering altogether, how have you experienced his answers to prayer and faithfulness to you in the middle of it?
Yellow Bubbles

One Minute Prayers for Parents

Just as God breathed life into us (Genesis 2:7), He breathed it into His Word (2 Timothy 3:16). The ancient rhythm of breathing that began in the Garden of Eden is repeated at least a dozen times a minute every day of our lives.

To pray continually is to reorient from task to presence – less about constant communication than about abiding presence – leaning into a quiet and tender closeness with God.

Pray Continually

To pray continually is to reorient from task to presence. It is less about constant communication than abiding presence. Lean into a quiet and tender closeness with God

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