Chronic illness impacts millions of children worldwide.
A chronically ill child affects each family, and every family member, differently, often impacting a child’s development, behavior, self-awareness, independence, daily routines, recreational activities, and education. Yet illness can also be a catalyst to building lifelong compassion, resiliency, and faith.
Our Children’s Program grew from a desire to care for our youngest in tangible ways. It began with delightful notecards and stationery designed by one of our Creative Contributors to encourage children who may be hospitalized, homebound or just having a tough time. Offering a kind word to a child affected by chronic illness provides the gift of knowing he/she is not alone.
These same notecards or stationery can be used to teach your children to write caring notes to those affected by chronic illness. Empathy and kindness can be taught. Old-school letter writing is almost a lost art, but through our #PenToPaper program we hope to rekindle it!
“Therefore encourage one another and build each other up, just as in fact you are doing.” 1 Thessalonians 5:11 Our program grew so we could encourage you and build you up as you climb the difficult mountain of caring for an ill child. Having resources at your fingertips – books, blogs and even more became our next step almost overnight. Through our Pass It On program we hope to continue to gather more resources to share in the future.
Children impacted by illness and pain
Have fun with your special kindness activity today. Draw or write what you did and especially how it made you feel.
- How does it make you feel to be kind?
- What special kind thing would you like to do?
Kid-friendly photography challenges are fun and an easy way to express creativity. Go on a photo scavenger hunt, photo walks, notice the shadows, or how about clicking a picture everyday for a month?
Photography Challenges for Teens and Tweens
Photography challenges are easy and fun. Pick up your camera, notice, and click. Take a selfie, go on photowalks, choose a theme, or how about photos of books?
Your Story Matters
Stories are vital to us as people: who we are as individuals and who we are as a community. We each have a story to tell. YOU have a story to tell, and there are many creative ways to tell it and maybe even to share it with others.
I was so incredibly touched when my daughter opened her #PenToPaper gift and handwritten encouragement card from Chronic Joy. When they said they wanted to encourage young adults living with chronic illness, I was super impressed … and so grateful when they included my daughter. Young women and men need to hear others care about them as they navigate the very disheartening struggles of chronic illness. My daughter just loved this and felt “seen” and cared about as soon as she opened it to her surprise. ❤️❤️ Heather M.
Chronic illness is hard. Often finding and/or being a part of a community when your child lives with chronic illness as a constant companion can be even more challenging.
The Rally Board: The Story Of A Journey Through Pediatric Surgery And The Valuable Lessons Learned Along The Way
This true story about how a small whiteboard used to capture only positive events caught the attention of people all over the world and helped a family survive the emotional and physical struggles of their baby daughter's three open-heart surgeries. It is primarily intended to help those families that are about to embark on a difficult pediatric medical situation.
A book for kids that have a scar on their chest from open heart surgery to repair a CHD. Used by families, schools and hospitals, Zip-line whimsically explains the answer to the question "How did that line get there?" The story centers around a little girl and her bunny rabbit explaining to the reader how she got the scar on her chest and how she isn't any different than anyone else.
A moving and true story about one little girl and her super energetic, superhero dad whose battery suddenly and unexplainably goes flat and will not fully recharge. This rhyming story shares their journey through the eyes of a child as she comes to terms with her father’s condition.
Toby loves his big sister Clemmie. She always looks after him and he looks after her—no matter what. Toby knows his sister is very brave, but when she has to go to the hospital again, they both have to help each other face their fears. Together, they still find ways to have fun and make the hospital a much better place. Their uplifting story will be loved by parents and children alike who find themselves in a similar situation.