Parenting a Child with Chronic Illness
A Blessing in Disguise!
Parenting a child with chronic illness requires more strength, resolve, perseverance and courage than we likely ever dreamed possible, yet it also blesses us with the gifts of compassion, perspective, presence, and profound love as we are daily drawn closer to Christ.
About Parenting
Parents want to protect their children and keep them safe. It can be challenging to learn that your child has chronic illness and/or mental illness. Often parents feel guilty, weary, anxious, depressed, lonely, and sad.
Almost 42% of children live with at least one chronic illness.
Worldwide 50% of all mental illness begins by age 14 and most are undetected and untreated.
Train up a child in the way he should go: and when he is old, he will not depart from it. Proverbs 22:6 KJV
Grit • Strength of Character
“In order to cultivate gratitude in kids who are sick, the focus must be on allowing them to tell their own #story, creating a safe space for them to share, and creating opportunities to highlight the blessings and strengths around them.” DiggingDeep.org
Embrace the unique way your child is blooming
“Embrace the unique way your child is blooming – even if it’s not in the garden you imagined.” Jenn Soehnlin
My Children’s Pain
“There is a purpose to suffering,” says Timothy Keller, “and if faced rightly, it can drive us like a nail deep into the love of God and into more stability and spiritual power than you can imagine.” Cindee Snider Re
Special Needs Parents
“As special needs parents, we don’t have the power to make life fair but we do have the power to make life joyful.” Blaire DeCarlo
Children Commute Between Worlds
“Children living with illness inhabit two worlds: the medical world and the wider world of “normal.” Most of the time children ‘commute’ between these worlds, an extraordinary challenge.”
Prayer for Parents
Chronic illness is hard. Often finding and/or being a part of a community as a parent of a child with chronic illness can be even more challenging.
Blog Posts
If You Ever Need to Talk: Finding Comfort and Empathy
Parents of chronically ill kids are the best people. They’re the best at encouraging without offering advice, at listening without trying to one-up with their own story. And they’re the best at offering empathy that comes from having walked a similar road. I could learn from these parents.
For a Mother’s Soul • Scriptures to Encourage Your Heart
May these Bible verses be balm for a mother's soul and be words of truth that will lift you up as you continue in your parenting journey.
Chronic Grief is Real Though Not An Illness
Grieving is chronic, though not a disease. It doesn’t just come once and disappear. When you lose someone, you experience a grief that will never completely go away. Grief also comes to those with chronic illnesses. They have had to grieve many losses including some of their dreams.
Featured Books
The Blessing: Giving the Gift of Unconditional Love and Acceptance
Gary Smalley, John Trent & Kari Trent Stageberg
Children of every age long for the gift of “the blessing” — the unconditional love and approval that come from a healthy relationship with their parents. This life-changing gift is essential for instilling a deep sense of self-worth and unshakable emotional well-being. Offering solid, practical advice and a fresh perspective on making this gift a bigger part of our families.
The Life We Never Expected: Hopeful Reflections on the Challenges of Parenting Children with Special Needs
Andrew Wilson, et al.
Sometimes life throws you a curveball. Andrew and Rachel Wilson know what it means to live a life they never expected. As the parents of two children with special needs, their story mingles deep pain with deep joy in unexpected places. With raw honesty, they share about the challenges they face on a daily basis, what it means to weep, worship, wait, and hope in the Lord. This book will help you cling to Jesus and fight for joy when faced with a life you never expected.
Is Your Teen Stressed or Depressed?: A Practical and Inspirational Guide for Parents of Hurting Teenagers
Dr. Arch Hart and Dr. Catherine Hart Weber
The teen years are hard enough. But with today's increased pressures, it's no wonder many teens are overwhelmed. The result is a generation experiencing greater stress and feeling more depressed than any other. Discover practical suggestions, spiritual solutions, and encouragement, this resource helps parents and teens face their own feelings of fear, anger, and hurt.
Comfort: Inspirations for Parents of Chronically Ill Children
Kathy Hardy
This sensitive, honest, and heartfelt devotional doesn’t pull any punches. It encounters all aspects of raising a chronically ill child and helps others understand the day-to-day struggles and joys. It is eight weeks of reality: the good, the bad, and the ugly. At the end of each week of devotions, you’ll find a short chapter of Kathy’s family’s continuing story of raising their eight children, three of whom have Cystic Fibrosis (CF).
Resources
ARTICLES
To Those Caring for Sick Children, Lexi Behrndt
“You are heroes. You are angels. You get to see miracles happen daily at your job. You get to see little lives come back after catastrophe and devastation, and you watch as they heal and grow and smile again.
And then sometimes you don’t.”
To the Momma of a Critically and Chronically Ill Child, Lexi Behrndt
“You are brave. You are strong. You are loving. You fight for your children when they can’t fight for themselves. You hope for them and you stay positive for them, and then run to the bathroom just to cry in the stall where they can’t see. You research and talk to doctors and talk to other parents to find the best possible treatment plans and solutions to give the best life to your child…You go to the places no one wants to go. You know a side of the world that most would like to pretend doesn’t exist.”
Parenting Through Chronic Illness, Rachelle Wiggins
“For the past decade, God has allowed me the gracious trial of raising my children from the bed of chronic illness. The learning curve was steep: I battled against the desire to be more and do more while living within the limitations of a broken body. Over time, I recognized a few principles that helped me survive — and still be a good parent — during the storm of ongoing illness.”
VIDEO
Welcome to Holland, Emily Perl Kingsly
Trying to describe being the parent of a child with a disability or chronic illness can be very challenging. This short video offers a beautiful and creative explanation.
“The loss of that dream [a well child] is a very significant loss, but if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.”
WEBSITES
KEY MINISTRY is uniquely called and positioned to serve churches seeking to become more intentional and effective in ministry with children, teens, and adults impacted by mental illness, trauma, and developmental disabilities and their families, and to connect families to the people and resources – both in person and online – that they need to support them in their special needs parenting journey.
ONLY 7 SECONDS – Remember that time when you felt like disappearing and were sure no one would even notice? That moment was real. So real, that millions are experiencing the same moments of hopelessness in their daily lives. Your story is important. Isolation, depression and anxiety are real, and they have a bigger effect on our lives than we realize. It only takes seven seconds. Send one simple message. You could impact a life, forever.
When Kristin Wall’s son, Ethan, was bedridden for twenty-three days, he missed a lot more than school and the regional basketball championships. Over the course of his illness not one friend or teammate reached out to him, and as Kristin observed, that had a devastating impact on her son’s mental state. “I watched him go into depression,” she said. “These boys are boys I’ve fed and treated like sons for years… and not a single text came through.”
“Because of everything my family went through with my son and what our small town had faced, I felt led to create a movement called #only7seconds.” The goal of the movement was simple: spread kindness through thoughtfulness. “Take seven seconds out of your day to send a text telling someone that you are thinking of them.” To Kristin, this simple thought meant everything. “You never know if that text could be the one thing giving them an inkling that life is worth living.”
For A Mother's Soul
May God shower His blessings on all mothers, grandmothers, great-grandmothers, mother’s in law, and mother-like figures in the world. May He give grace and strength for all your days.
Emotions Wheel for Children
The Emotions Wheel is designed to help children recognize and name the emotions they experience. As their emotional vocabulary grows, so does their ability to effectively communicate what and how they feel.